Genome and Genetic Testing: Ethical Issues Facing Todays’ Nurse

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Genome and Genetic Testing: Ethical Issues Facing Todays’ Nurse Ethical Foundations With the evolving science of genetic and genome testing, it is surprising to find that there are no codes of ethics that are aimed specifically in that area. Although as nurse’s in the United States we look to the American Nurse Association’s (ANA) Code of Ethics to guide us in our endeavor to provide the best care possible. “Nurses need to recognize that their actions and those of others providing health care based on genomics are of significant concern since a single act may simultaneously benefit one person while harming another” (Badzek, Henaghan, Turner, & Monsen, 2013). Genetic and genomic testing poses ethical issues to today’s nurses as concerns arise for privacy, informed consent, and communication of results. In order to address these issues health care providers need to be educated in the recent advancements of genomics and genetic research. Nurses are in a unique position to educate patients on the benefits as well as the disadvantages of using genome testing for inherited diseases. Currently, the National Institute of Health (NIH) is researching the “Ethical, Legal, and Societal Issues (ELSI) pertaining to genome testing” (McEwen, Boyer & Lockhart, 2014). According to The Human Genome Research Institute (NHGRI) there are four areas of focus: 1. Genomic Research. The issues that arise in the design and conduct of genomic research, particularly as it increasingly involves the production, analysis and broad sharing of individual genomic information that is frequently coupled with detailed health information. 2. Genomic Health Care. How rapid advances in genomic technologies and the availability of increasing amounts of genomic information influence how health care is provided and how it affects the health of individuals, families and communities. 3. Broader

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