Henrietta died when Deborah was two years old. Deborah didn’t know anything about the HeLa cells until she got older. When she found out about her mother’s cells, it is obvious that struggling to understand both what was done to her mother and the extent of her mother’s suffering as a result. When Deborah first learned that living HeLa cells were used in research, she wondered how her mother had died but still had living cells. Also, she wondered if it hurt her mother when people experimented on the
Although the Socratic seminar and the novel left many questions unanswered for me, it made me understand more why things are they way they are in the healthcare and scientific research industries. It made me look more closely at the specific details health care professional do in their line of work. In society, money is the key to getting things to happen. It is inferred by the book that informed consent and bioethics are not as important as the appropriation of funds for research. I can tell that this idea is a huge controversy among different individuals.
Rebecca didn’t get any of the information in the book from any website. This book wasn’t written until after the death of Henrietta. She actually took time to cooperate with Henrietta’s family, friends, lawyers, doctors, ethicists and also many journalists who’ve written about the Lacks family. The main person that Rebecca has taken information from is Henrietta’s daughter, Deborah Lacks personal journals. She didn’t just take information from human figures but from archival photos, documents, and scientific and historical research.
Nduka Onuchukwu Shiladitya, Sen College Writing September 18, 2012 Rough Draft The Individuals Right The Immortal Life of Henrietta Lacks shows how an individual’s personal rights can be effortlessly breached when it involves medical science and research. Being in their position, doctors could say many things to a patient that the patient could deem true, and what was really the truth, was kept confidential to those who only studied science. “Everybody knew black people were disappearing cause Hopkins was experimenting on them!” (Skloot 169) clarified the mindset of the people, specifically Bobbette in this quote, who did not know and were kept out of the loop. The conflict of the plot, and in society at the time, is whether it wrong for a doctor to take samples from a person’s body without them knowing? It could be seen as immoral, but what if Henrietta had been told her cells were going to be used for testing?
Movie Write up Samantha Viken November 9, 2014 In what way was the care and support provided by Dr. Posner and Dr. Kelekian ultimately inadequate for Vivian Bearing? The support and care provided by Dr. Posner and Dr. Kelekian was inadequate because Vivian Bearing was not treated as a person. In the film when Vivian first was diagnosed by Dr. Kelekian she was not shown any moral support for her diagnosis. When Vivian went in to have her first chemo treatment she was treated with no compaction by Dr. Posner. This went on throughout the film.
He has a 14-year-old autistic daughter. Lisa is the second candidate; she is 12-years-old and has had to suffer with health problems her entire life and has done nothing to bring these health problems onto herself; she was born that way. Her father is an oncologist at the hospital and has offered $2 million if she receives the transplant. She is a great candidate; but the heart transplant will only be effective until she is in her early-20s. Ozzy is
The HIPAA privacy standards make up the HIPAA privacy law. Any violation of the HIPAA privacy rules can leave a healthcare institution open to legal consequences from the wronged individual and possibly the federal government. In this case our elder Mr. Stevens had made it clear to his provider that he did not want his family to be made aware that he was being treated for cancer. This fact was documented in Mr. Stevens’ electronic medical record, but that should not have made any difference in this scenario because his condition would never have been revealed if the clinic staff had followed proper HIPAA
No one in the Lacks family had been informed of the existence of their mother's cells until a researcher called in the early 1970s wanting to test the family. With this news, the family felt confused and scared. One of the family members described feeling to be the same as being raped, where they did it and nobody told them. The reporter even interprets that the “devil” in this whole study was Johns Hopkins University. One interviewee, Dr. Daniel Ford, states that, "Johns Hopkins needs to do a better job of communicating with the family and of recognizing it" but he also states that using Henrietta's genes was a standard practice at the time.
Science and society should never take precedence over the well-being of the subject, yet in The Tuskegee Study the PHS was more worried about what their findings could do for science then they were with their participants health condition. The ethical guidelines of research call for “ limited “ deception, meaning you can withhold minor details so long as the subjects health and well-being is not at risk, and the subjects not
No one has the right to decide who should live and who should die. This decision is left up to God (or whomever you worship) or fate. By legalizing Physician-Assisted Suicide and making it acceptable, this opens the door for abuse of power, breaches the Hippocratic Oath “I will not administer poison to anyone where asked," and I will "be of benefit, or at least do no harm.” However, compared to the answers given by Physicians in the 1996 survey, it seems that the Hippocratic Oath may already have some grey areas. Physicians are also human, which means they can make mistakes. (Braddock C, 1999) The diagnosing of diseases and their prognosis may be science, but it is not absolute.