Lack Of Consent In Medical Research

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In today’s world if a person were to walk in a hospital and need surgery or any kind of procedures they would have to sign a consent form. A doctor would talk to them about the problem and procedure first, and then ask them to sign documents that again explain the procedure, make sure they understand it and any precautions and then their signature is needed. Once the consent forms are signed that person has officially given the doctor permission to do what ever they need to. In the book The Immortal Life of Henrietta Lacks, author Rebecca Skloot tells the story of Henerietta Lacks a black woman that had cervical cancer and died in the early 50’s and how she has helped shape science, save lives, and further medical research unknowingly and…show more content…
At one point she talks about how Henrietta was not told of the effects of her procedures. Skloot writes that when Henrietta treatments were coming to an end she mentions having another child to her doctor, but the treatments had left her infertile. The doctor put in her chart that she said “If I had been told so before I would not have gone through with the treatments” (47, 48). Furthermore, skloot brings up the Lack of consent from the Lacks family discussing how no one told them that Henrietta’s cells existed until the 70’s. When Doctors and Scientists wanted to find out more about the cells Henrietta’s children were then used in research without their consent. This same kind of unethical practice continues to happen now. The bioethical legacy of Henrietta Lacks, as Skloot conveys, is complex yet instrumental to out legal understanding of human experimentation today. Debates over bodily rights, doctor-patient confidentiality, and the use of information acquired through genetic testing, have led to state and federal oversights such as the 1978 Protection of Human Subjects in Medical Experimentation Act, the 1996 Health Insurance Portability and Accountability Act, and the 2008 Genetic Information Nondiscrimination Act. (Tunc 40-41) “Today many Americans have their tissue on file somewhere. When you go to the doctor for a routine blood test or to have a mole removed, when you have an appendectomy, tonsillectomy, or any other kind of ectomy, the stuff you leave behind doesn’t always get thrown out. Doctors, hospitals, and laboratories keep it. Often indefinitely” (skloot 315). .) The way Henrietta’s cells were taken from her without her knowledge or consent and her children’s shows how doctors and scientists felt about and treated blacks in the

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