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Personal Health Records: Guidelines for the Advanced Practice Nurse Essay

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Personal Health Records: Guidelines for the Advanced Practice Nurse
Alessandra Ferrerio




October 03, 2011


Personal Health Records: Guidelines for the Advanced Practice Nurse
Description of the Ethical Issues
A recent influx of new technology is changing healthcare practices. The Health Information Technology for Economic and Clinical Health provisions of the American Recovery and Reinvestment Act of 2009 (HITEC) supports development of health information exchange to facilitate the interoperability and portability of electronic medical records (EMR). The intended goal of information exchange is to share health data between providers, payers and patients to reduce medical errors, decrease healthcare cost and focus attention on quality (Vest & Gamm, 2010). As part of this program, primary care providers earn financial incentives to implement EMRs and connect private practice with local hospital systems, insurance company databases, Personal Health Records (PHRs) and regional health information exchanges (RHIE) to improve continuity of care.
I recently had the opportunity to assist with a research project using smartphone technology to facilitate diabetes self-management in rural Indiana. As part of the study, participants were required to maintain a PHR online at http://www.nomoreclipboard.com. My role was to train patients on No More Clipboard. The clinic director suggested I create PHRs for my family to familiarize myself with the product. I filled out electronic forms regarding insurance information, social security number, and family medical history. Some of the data was very personal and I felt increasingly uncomfortable uploading this information onto the website. I wondered whom I was sharing my personal health data with and who had permission to access to my PHR online. I envisioned data being hacked, shared on face book or identities stolen. I started to ponder the best approach to PHR training.   What did patients need to understand about...

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