Case Study - Cystic Fibrosis Foundation

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Case Study Cystic Fibrosis Foundation Orlando Chapter PAD 5145 Executive Summary The Cystic Fibrosis Foundation is the leading organization in the United States devoted to curing cystic fibrosis. The Foundation was established in 1955 by a group of volunteers in Philadelphia, Pennsylvania. It is based in Bethesda, MD and was established in 1955 by a group of volunteers (http://www.cff.org/aboutCFFoundation). The mission of the Cystic Fibrosis Foundation, a non-profit donor-supported organization, is to assure and control cystic fibrosis and improve the quality of life for those with the disease. There are more than 75 chapters of Cystic Fibrosis Foundations across the country. These organizations host a variety of special events to raise funds for vital Cystic Fibrosis programs and research. Cystic Fibrosis Foundation accredits 115 Cystic Fibrosis care centers, including 94 adult care programs (Cystic Fibrosis Foundation 2010). Cystic Fibrosis is an inherited chronic disease that affects the lungs and digestive systems of about 30,000 children and adults in the United States. In the past, children born with cystic fibrosis could not live to see elementary school. However, with research and advanced treatments children are able to live past their 30’s, 40’s and even beyond (Cystic Fibrosis Foundation 2010). There are several treatments that cystic fibrosis patients can use to help their lungs get through the respiratory process. Cystic Fibrosis Foundation’s acting governing body is responsible for setting a mission and purpose for its organization. The Board is a diverse group of 18 independent members plus the CEO, who bring a variety of experiences and expertise to the governance of the Foundation. The Cystic Fibrosis Foundation (CFF) Orlando Chapter does not have a specific recruitment plan. CFF is open to new volunteers and has a
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