Caring for the Terminally Ill Patient

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Caring for the Terminally Ill Patient
Barbara Vaughan
Western Governors University
HAT1, Task 2

December 20, 2012

When caring for the terminally ill patient, healthcare professionals are often challenged by the concepts of quality of life and health promotion and the apparent conflict with the goals for care, which ultimately bring us to the death of the patient. Burckhardt and Anderson (2003) remind us in The Quality of Life Scale (QOLS): Reliability, Validity, and Utilization not confuse quality of life with “functional status, symptoms, disease processes, or treatment side-effects.” The healthcare professional must consider their own perceptions about quality of life as they initiate a plan with this patient to navigate the journey to life’s end. A. Personal Perceptions about Quality of Life and Health Promotion
Personally, when I am at the end of my life, I want to be engaging with people as long as possible, even if only as an observer. I wish to be as independent as possible for as long as possible, but I hope not to insist on independence at the cost of isolating me from others. I believe people have the right to choose how they live even as they are dying. I believe in allowing others to serve or give the gift of service as they provide physical and emotional care to those in need of that support. Given my personal desires, it may be hard for me to accept someone else’s decision such as Mrs. Thomas’ to isolate one’s self and not reach out for support from those who are willing to be there for them. I anticipate it would be hard for me to stand by and watch someone choose to be alone and walk through this difficult time alone. It would also be difficult to stand by and watch as family chooses not to be present, for me or for someone I’m caring for, because it’s too hard for them. Creating a nursing action plan for Mrs. Thomas and her husband to
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